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Archive for July, 2010

As I was saying…

Driving toward Rochester earlier this week, I found myself feeling oddly calm and ready to get on with my tests and talk to the doctor. It had been a fairly quiet, good summer prior to this, and if things were going to change, I was ready to hit them head on.

In the past three months I had gotten my blood pressure and heart rate under very good control, albeit with a lot of daily meds. I had been spending a lot of time with family, both mine and Maggie’s. All-in-all not a bad summer. But I was still exhausted. I still suffered from 3-5 “episodes” a day that kept me in bed until late morning and then back on the sofa for the afternoon. I was still tied to a regimen of pills, naps, internet, and greatly reduced expectations. I had finally figured out how to function fairly normally within these confines, but any trip to the store or extended vertical activity meant an equal amount of time spent horizontal the next day. I also made the conscious decision to not really blog during this period as I was just trying to be as normal as possible and do life the best I could.

So I went through my battery of tests on Tuesday morning, had a great lunch with family at Lord Essex downtown, and then we headed over to get the results.

And good results they were!

No measurable tumor growth or multiplication. None. We’ll check again in 6 months. This is the best possible scenario for me. Time is now my enemy, so each 6 month period is a gift. I will take it (with a side of fries).

However…

(there’s not ALWAYS a ‘but’ , sometimes it’s a ‘however’)

…the episodes with my head, heart, and vision do not fit the pheo profile. They are troublesome, and the reason I went to the doctor in the first place last January. So it’s time to move on to neurology and try to narrow this down to something fixable. August 10th will find me back in the tube getting an MRI of my head. Not fun. One of these days I must blog about all of the different times I’ve been in the various tubes (it seems to me I should be radioactive, or at the very least magnetized).

It has been a good week. I’m very happy with the tumor results. I’m hopeful that the Mayo Neurology Dept will be able to help me, and the rest of the summer is laid out, to be taken advantage of as much as I can while doing my damndest to stay vertical during the day:

Enright family vacation on Cross Lake, Gage’s upcoming Marching Band season, attending Drew’s Signal Corp graduation in the spring, trips to London and Vegas with Maggie, the real possibility of a EuroPass vacation. Hell, even a job if I get really crazy. All things and more that I am once again looking forward to.

Remember, we’re all terminal. Some of us are just “lucky” enough to get official walking papers.

Oh, got to see, got to know right now
What’s that riding on your everything?
It isn’t anything at all

Oh, got to see, got to know right now
What’s that writing on your shelf
In the bathrooms and the bad motels
No one really cared for it at all
Not the gravity plan

Early, early in the morning
It pulls all on down my sore feet
I want to go back to sleep

In the motions and the things that you say
It all will fall, fall right into place
As fruit drops, flesh it sags
Everything will fall right into place
When we die, some sink and some lay
But at least I don’t see you float away
And all the spilt milk, sex and weight
It all will fall, fall right into place

Oh, got to see, got to know right now
What’s that riding on your everything?
It isn’t anything at all

Early, early in the morning
It pulls all on down my sore feet
I want to go back to sleep

In the motions and the things that you say
It all will fall, fall right into place
As fruit drops, flesh it sags
Everything will fall right into place
When we die, some sink and some lay
But I won’t stop until you float away

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